Hospital Stay and Some Results

When we arrived Tuesday, Childrens had no record of arrival or room reserved for us. We had to get the reservation form from Dr. Tarr's office because the pediatrician was on vacation. When they finally got everything straightened out and sent us to our room, the resident informed me she didn't have Paul's medical records and no authorization from the Dr. on the floor about what they were supposed to be doing. Fortunately, I had just gone to three places the day before collecting all of his records from three Dr.s. I gave them to her to review, and it was in the pediatrician's notes what they needed to get done. She was able to get the tests coordinated except for the MRI because they were already booked for the next two days. They don't schedule them until the patient is physically in the room. Paul got a late start on the urine collection, but it worked out. We will get results in a week or so. We are scheduled for the MRI on March 31st as an outpatient. Some of the blood work already came back on Paul's cortisol levels. The Dr. said he passed with flying colors, and that the records he reviewed from the other Dr. were in comparison to an adult. He said there is not sufficient research out there on children. They don't suspect any of the other blood work to come back with problem. Paul is quite a mystery at this point. The Dr. said if the urine shows copper toxicity, this can cause a lot of problems for the liver but didn't indicate this to be a cause of severe abdominal pain or nausea. They haven't done a colonoscopy because the endoscopy and upper GI give no indication of Crohns or colitis. The therapist was helpful in acknowledging the difficulties associated with adjusting to this new way of life. The Dr.s are not familiar with fructose intolerance and don't have any explanation as to why he cannot process sugar in its simplest form, but we are to stick to his fructose free diet at least for now.