Sunday, March 29, 2009

More Results

The urine analysis came back showing no copper toxicity in Paul's body. The rest of the blood work came back okay as well. The MRI is scheduled for March 31st in the evening. We are not expecting to find anything because the cortisol levels look fine. We are thinking his exhaustion may be due to a Vitamin C deficiency commonly found in patients with Fructose Intolerance. There are not meds out there to relieve his symptoms because all of them contain ingredients he can't tolerate. I am going to try the glucose tablets this week before he eats any questionable foods. He is still struggling with a lot of pain, however, he has made significant improvement since the diagnosis. He is not bedridden and curled up in a ball like he used to be. He does have those moments but they are less common. We are also looking into getting him some counseling to deal with this disease. The Dr. mentioned when a person is sick for this long, sometimes people get anxiety and fear about what is going to happen to them. The psychological factor can play an even greater role to either make it better or worse. We have noticed a significant amount of anxiety over the last few weeks. He has been fearful of things that were never a previous concern. He is also experiencing shortness of breath sometimes and occasional headaches. Our prayer request specifically would be finding a counselor to minister to him and help him with his fears and emotions to deal with all of the aspects of this major change, asking for pain relief, and finding joy in the midst of his suffering. We are so thankful for all of your support and love.

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