Monday, March 2, 2009
Progress and Diet Discoveries
I am happy to report Paul went to school for 2 hours today (with me in the room) and then was tutored after school for an additional hour (while I went to Whole Foods). He held out pretty well this afternoon and said he wants to try going tomorrow morning (even P.E.)! He is still feeling stomach pain and nausea and is constipated (4th day) but is willing to try despite those difficulties. We talked about the fact that he can feel awful at home or at school, and at least at school he can see his friends. He is a little humiliated about the restroom situation and we are not sure how that will pan out, but he has persevered through so much, and I am really proud of him. On the dietary front, we found out bacon from Subway is cured in sugar and that romaine lettuce has twice as much fructose as glucose (bummer). I thought he could eat Caesar salads. Each new discovery helps in his diet dilemma. Someone asked me what he is eating and I replied "chalk, drywall and a little bark"! Although, there are more and more things we are discovering. We have found all natural peanut butter cookies made with brown sugar which seems to be okay. He is NOT doing well with any fruit except rasberries (small amount) and bananas (which are 75% glucose). Donuts are okay too because sucrose (table sugar) can be tolerated (1/2 glucose and 1/2 fructose in small amounts). CRAZY. Some high fructose corn syrup he can tolerate if it is 1/2 glucose and 1/2 fructose. The problem is not knowing the ratio, and I don't want to take risks at this point. I found some glucose tablets online at amazon.com today, so maybe we will experiment. One slice of white bread is ok. We are using all natural peanut butter and he can snack on most nuts and can eat a small amount of celery (1/2 and 1/2). Corn chips are okay too with guacamole (although he hates it). He can also have Cheerios and Shredded Wheat for breakfast (although most of his diet is restricted to the Celiac diet for wheat products). We have found he doesn't do so well with oatmeal (which I don't understand yet). He can have organic white flour tortillas with cheddar cheese, which is what I will bring him for lunch tomorrow. We had a delicious meal delivered to our front door today of homemade mac and cheese and roast beef with some fat free jello and steamed veggies. Paul could eat the mac and cheese, roast beef and jello. It was a home run dinner! We feel so loved. Also, I think he will be able to get into the Diagnostics Center at Childrens (not sure when yet). They specialize in handling patients with unexplained symptoms, like the weird symptoms that seem unrelated to his digestion issues. We should also get the urine and saliva analysis results from the homeopathic Dr. shortly, which may be able to piece some more of the puzzle together. I will be glad to learn about specific enzymes geared to helping him digest carbs and proteins at least.
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