Monday, March 16, 2009

God Said No

I just received a good email about God saying no. I will share a little of it. I asked God to grant me patience, God said no. Patience is a byproduct of tribulations; it isn't granted, it is learned. I asked God to spare me pain, God said no. Suffering draws you apart from worldly cares and brings you closer to me. I asked God to make my handicapped child whole, God said no. His spirit is whole, his body is temporary. I asked God to help me love others the way he loves me, God said Ahh, now you are getting the idea. We really need to focus on what God wants, not what we want.

Helpful Information

A dear friend that has been reading the blog who has been diagnosed with Addisons has given me so much helpful information. She asked me to have them test Paul for the antiadrenal antibody for his am fasting bloodwork. She said it checks to see the if Paul's adrenals are under attack from a genetic autoimmune antibody typically passed through the mother to the child. Since I have autoimmune issues (Fibromyalgia), it should be tested. This is where his adrenals could be under attack internally and not related to diet or toxins. Most Dr.s typically don't look for it but it can be life threatening if not found. She told me to ask for Dr. Norman Fishman and Don Skor who specialize in endocrinology. She also mentioned the MRI they will be doing on his pituitary is particularly loud and lengthy and sounds like a drill in your head for 30 minutes. Please pray he can handle the noise.

Sunday, March 15, 2009

Research on Adrenals

When the adrenals are weak, a person may suffer from low blood sugar, low blood pressure, low body temperature and a feeling of exhaustion. They easily succumb to allergies and infections. Interesting fact: most asthma sprays contain adrenal-like hormones that mimic cortisol in the body. Nutritional deficiencies like B and C along with the accumulation of toxic metals and chemicals in the body can lead to adrenal fatigue. Antibiotics can accumulate in the liver and other organs, and toxins can be generated within the body due to impaired digestion. Additional stressors that tax the adrenals include: physical trauma, excessive exercise, infections, prescriptions, chemical toxins, emotional trauma, poor diet and lack of sleep. Long term over-activation of these hormones can deplete kidneys and adrenals which severely impairs the ability of the immune system to function. The adrenals are fed by nerves that connect to the spine. Those who are susceptible to infections or allergies are often told they have weak kidney energy. Acupuncture can be beneficial for those suffering adrenal exhaustion. Also, a diet high in potassium such as sunflower seeds, wheat germ, almonds, peanuts and pecans can help. For kidney energy eat millet, black beans, kidney beans, barley, wheat germ, potatoes, eggs and blueberries. Vitamins such as pantothenic acid (100 mg per day), C/with bioflavonoids for stress, B6, Zinc, Magnesium, E for oxygen to the cells, extra calcium, magnesium, chromium, iron, and selenium are all beneficial. Flax oil, omega 3's (salmon), Co Enzyme Q-10, Lechithin for nerves, grape seed extract to reduce stress, and wild yam can all help. Rebounding on a trampoline stimulates lymph flow better than any other exercise. Paul suffers from asthma and obviously now food allergies (fructose intolerance) along with exhaustion. He has been on so many antibiotics for strep throat, and has had symptoms of low blood sugar, and low blood pressure. I ordered copies of his medical records and will be picking them up Monday. I think he had six rounds of strep throat pretty close together at the end of school last year and was on the heaviest meds without probotics which could have easily affected all of the trouble in his body. I guess we will find out Tuesday and Wednesday. Hopefully, this info will be helpful to any of you who are also fatigued and suffering.

Friday, March 13, 2009

Confirmation of Hospital Stay

Paul is confirmed for Tuesday and Wednesday of next week. They want to check his cortisol levels before and after meals to see how his body reacts. Dr. Tarr's assistant also told me they will be checking his urine for copper toxicity through their lab. The MRI will be of his brain. I am thankful they can get all of these tests run in two days. It has been such a long journey.

Thursday, March 12, 2009

Confirmation of Hospital Admission

The pediatrician just called and said we should stick to the plan of admitting him to the hospital early next week. She also said Dr. Tarr would be in contact with the other Dr. from the Diagnostics Center anyway. I am going to have the test results from urine analysis, saliva analysis and cortisol test from the Chiropractor/Nutritionist/Internal Dr. sent over as well, even though the standards for "normal" may differ. Paul has never had an MRI, so I know that will definately be beneficial. I have had many people tell me they are surprised there was never a colonoscopy or CT Scan of his abdomen since he is experiencing so much pain in that area. The only answer I received is that the colonoscopy is pretty invasive and the CT Scan is really only used as a last resort. I will find out what day he will be getting admitted tomorrow and will post it when I find out.

Possible Hospital Stay

The pediatrician called back to let me know Dr. Tarr wants to admit Paul to the hospital (Childrens) early next week. They already discussed what will be done. She told me they will do an MRI of the head, a 24 hr. urine analysis, and do more extensive blood testing for the cortisol levels (even though she just told me his are fine). This involves his blood being taken 4 different times throughout the day. She said they will also have a therapist on hand for us. I have asked the school office for all of Paul's work for next week, so he will at least have something to do while he is there. She told me not to worry about his white blood cell count because other things in the blood look fine. Then I got a call from the Diagnostics Center telling me they have a cancellation and can get him in March 18th. I called and left a message to the pediatrician to ask her what we should do now. Should we wait and go to the Diagnostics Center or go with the new plan. I will blog more when I find out.

Frustration

The pediatrician called back today to tell me the blood cortisol level is fine. At this point, I am totally confused. Why would it not be fine on a saliva and hair analysis? She recommended admitting him to the hospital too get in a little sooner than April 1st. She said she has already spoken with Dr. Tarr at Childrens, and he is going to quarterback the situation from here. I should hear something today or tomorrow. She said they will do the necessary additional tests they feel are required, but if everything shows up negative that we have to promise her Paul, Jr. will get some therapy. I think she is still thinking it is "in his head" even after a Fructose Intolerance diagnosis and a low white cell blood count (cut in 1/2 in 6 weeks). Does stress cause a drop in the white blood cells? I am thinking he won't be the only one needing therapy!!!! He has strep throat right now for crying out loud. Does he get that from stress? Obviously, he needs therapy. He has been out sick for the last 3 months and not had any of the fun things in his life since December!! He has prayed to go back to school, prayed to play sports again and prayed that they will find his ailments. She said sometimes when kids are sick for a long time, they want to retreat. He doesn't want to retreat. HE LIVES FOR HIS FRIENDS AND PEOPLE! I barely saw him when he was healthy. He was playing with his cousins daily. I honestly didn't think I could get more frustrated, but I was wrong.