Perseverance

Well we couldn't get into the Diagnostics Center any sooner than April 1st but will be first on the waiting list, however, when my pediatrician called me back, I explained how exhausted he was all weekend after trying to play basketball. She asked if he had eaten anything yet today, and he hadn't because he was feeling too sick to eat this morning, so she ordered fasting blood work to be done to test his cortisol levels as well. She said she didn't test for it before because you have to jump through hoops with some insurance companies to get it covered for some reason (probably the expense because it is a little more complex). Also, he didn't have the dark colored pigmentation which usually accompanies hypocortisolism, but he DOES HAVE ALL OF THE OTHER SYMPTOMS! This will give us concrete information on his blood. We will be seeing the grandfather of diagnostics (brains behind the organization) at Childrens who is nationally recognized for dealing with difficult and peculiar (sp?) situations which will be good timing if this is Addisons Disease. It will give us much insight to the distaster that has developed in his GI tract and all of his other symptoms. I think it can be managed very well (only from what I have read online) and also have hope that the Fructose Intolerance is just a consequence of malfunction in his adrenals rather than a lifelong diagnosis. Your adrenals help your metabolism function (which is his problem with not being able to metabolize sugar, carbs and proteins). I am sure he will need a special diet, but not that extreme. I have a feeling his IBS, stomach pain, fatigue, exhaustion, and nausea will also diminish with proper treatment of his adrenals. If left untreated, Addisons is fatal. Persistance is always necessary if you feel in your heart something is wrong despite what the doctors are telling you. We might have accepted this as our "new" life with Fructose Intolerance with our 11 year old boy completely run down and exhausted with physical pain daily, and can't imagine the consequences of not pursuing it further.